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Mayer-Rokitansky-Kuster-Hauser Syndrome
I was born without a uterus. I have been trying to find out more
information on this. Is there another name for this besides primary
amenorrhea?
This is called Mayer-Rokitansky-Kuster-Hauser syndrome. It is the
most common congenital (present at birth) reason for primary
amenorrhea and it means that a woman is born without a uterus or
vagina. Primary amenorrhea really only describes the fact that you
have never menstruated. It is a result of not having a uterus rather
than a description of your actual condition. Usually women who do
not develop a uterus and vagina still have normal development of
other sex characteristics such as breasts and pubic hair, as well
as the normal production of hormones. If you have this condition
you were probably also checked for any developmental problems
in your spine and rectum. If you suffer from any lower abdominal
pain that comes and goes in cycles, you should be checked by a
gynecologist. Some women with Mayer-Rokitansky-Kuster-Hauser
syndrome do develop a small uterus or even the beginnings of a
uterus and can experience the symptoms of menstruation. You can
also still be vulnerable to endometriosis even though you have no
uterus. This means that the uterine lining is present outside of the
uterus, which can lead to pain and other health complications.
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